CUMBERLAND — Teams are needed for the Third Annual CureARS Golf Classic Oct. 5 at the Cumberland Country Club.
The event will raise funds for drug screening research for people affected by mitochondrial ARS disorders.
Background
In 2021, Desiree Magee — a 2000 Bishop Walsh School graduate and daughter of Dr. Howard Strauss and his wife Lisa — co-founded CureARS to fund research for the ultra-rare genetic disorder.
Her daughter Daphne, 8, was born with an ultra-rare mitochondrial disease that is terminal.
“There is no cure,” Magee, said in a previous Times-News article.
The nonprofit CureARS mission is to spread awareness of the disorder, connect and provide support to affected families and fund research for suitable treatment options and ultimately eliminate the disease.
During the past year, CureARS had ongoing sponsored research projects that include a drug repurposing project with Children’s Hospital of Philadelphia, and biomarker research with Children’s Hospital Colorado in collaboration with the University of Melbourne.
According to CureARS.org, the organization works with more than 250 families from 33 countries.
Since its 2021 launch, CureARS has raised more than $430,000 for research.
“When we say every dollar counts, we mean it,” the website states. “We are 100% volunteer-based. All proceeds go toward life-saving research.”
To donate or register for the golf classic, visit curears.org/golf-classic-2024.