PLATTSBURGH — Nearly seven million Americans are living with Alzheimer’s disease, according to the Alzheimer’s Association.
But despite the disease’s prevalence, two in three caregivers say they have difficulty finding resources and support for their needs. World Alzheimer’s Month is celebrated throughout September as a way to raise awareness and challenge stigma.
The Alzheimer’s Disease Caregiver Support Initiative, which provides free supportive services for those caring for people with Alzheimer’s disease and memory disorders in northern New York, believes in the importance of spreading compassion and understanding.
“When someone’s loved one is diagnosed with Alzheimer’s, it’s easy for them to feel like their entire world has changed,” Valarie Drown, MS, NCC, LMHC, director, Alzheimer’s Disease Caregiver Support Initiative, said.
“People may not understand when their loved one’s mood shifts or they become anxious and disoriented, which can lead caregivers to become increasingly isolated. Instead, it’s important for caregivers to surround themselves with people who get it and are open to learning.
The Alzheimer’s Disease Caregiver Support Initiative recommends the following tips to help others understand what someone is going through and help them throughout the journey:
– Avoid blanket statements. Often, caregivers feel too overwhelmed to take you up on your offer to call them if they need assistance. Instead of saying something like “what can I do,” just do it. Drop off their favorite dessert, run a quick errand or tell them you’re thinking of them.
– Be patient. Someone with a memory disorder can easily become confused. By showing patience, you can help keep them calm and avoid further mood changes.
– Respect someone’s schedule and routine. Keeping a routine, like eating at the same time each day, will help someone with Alzheimer’s from becoming disoriented. It’s important to be mindful of a caregiver and care receiver’s schedule and understand if they are unable to attend an event.
– Meet them where they are at. Understand that every day is going to be different.
The Alzheimer’s Disease Caregiver Support Initiative provides free services designed to make caring for a loved one with Alzheimer’s disease and other dementias a bit easier in Clinton, Essex, Franklin, Hamilton, Warren and Washington Counties.
Programs include respite, support groups, memory cafes and caregiver wellness programs such as tai-chi, hiking, crafting and book club. Those interested in learning more are asked to visit wehelpcaregivers.com.